LNA - Association Lesch-Nyhan Action

Site de lAssociation Française Lesch-Nyhan Action.Pour le soutien aux familles et à la recherche médicale sur la maladie de Lesch-Nyhan.

OVERVIEW

This web site lesch-nyhan-action.org currently has a traffic classification of zero (the smaller the higher page views). We have scanned twenty pages inside the site lesch-nyhan-action.org and found nine websites referring to lesch-nyhan-action.org. We were able to observe one contacts and directions for lesch-nyhan-action.org to help you communicate with them. We were able to observe two mass communication platforms possessed by lesch-nyhan-action.org. This web site lesch-nyhan-action.org has been on the internet for six hundred and seventy-seven weeks, twenty-six days, fourteen hours, and thirteen minutes.
Pages Crawled
20
Links to this site
9
Contacts
1
Locations
1
Social Links
2
Online Since
Jul 2011

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LESCH-NYHAN-ACTION.ORG HISTORY

This web site lesch-nyhan-action.org was created on July 08, 2011. It is currently six hundred and seventy-seven weeks, twenty-six days, fourteen hours, and thirteen minutes young.
REGISTERED
July
2011

WEB PAGE AGE

12
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11
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25
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LINKS TO WEB SITE

LND Famiglie Italiane ONLUS

The Association of Italian families involved. In the fight against the Lesch-Nyhan. SUPPORT THE INITIATIVES OF FAMILIES. Lesch-Nyhan Syndrome is a very rare disease that has severe implications on affected people and their families life. Books, thesis and articles. In this section you can download theses, books and articles on the Lesch-Nyhan syndrome. Reserved Area for the families. Please enter your username and password.

Joaquim, o menino sonho

ESTE BLOG FOI CRIADO PARA INFORMAR A TODOS QUE O VISITEM QUEM É JOAQUIM E O QUE PODE SER FEITO PARA AJUDÁ-LO. A SUPERAR AS CONSEQUÊNCIAS DE UM PARTO COM COMPLICAÇÕES. INFORME-SE SOBRE NOSSA CAMPANHA, AJUDE A DIVULGÁ-LA E CONTRIBUA. Quarta-feira, 23 de outubro de 2013. Tudo bem com todo mundo? Comigo, tudo ótimo! E com um nome esquisito. É! Na França, há uma.

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CONTACTS

Association Francaise Lesch-Nyhan Action Maladie Genetique

Administrateur Web LNA

8, rue Andre Malraux

Saint-Sever, 40500

FR

LESCH-NYHAN-ACTION.ORG HOST

Our parsers detected that the main root page on lesch-nyhan-action.org took one thousand and twenty-two milliseconds to download. I identified a SSL certificate, so in conclusion our parsers consider lesch-nyhan-action.org secure.
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1.022 secs
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SECURE
Internet Protocol
52.211.143.189

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I found that this website is weilding the nginx os.

PAGE TITLE

LNA - Association Lesch-Nyhan Action

DESCRIPTION

Site de lAssociation Française Lesch-Nyhan Action.Pour le soutien aux familles et à la recherche médicale sur la maladie de Lesch-Nyhan.

CONTENT

This web site lesch-nyhan-action.org had the following in the homepage, "Journée Internationale des Maladies Rares." We noticed that the website stated " Dans le cadre de la." It also said " Journée Internationale des Maladies Rares. 28 Février, nous vous proposons de renouveler votre adhésion à lassociation Lesch-Nyhan Action LNA. La cotisation est de 20 EUR et elle est assimilable à un don vous recevrez donc un reçu fiscal vous permettant den déduire 66 de vos impôts. Merci à tous nos adhérents, anciens et nouveaux! Nous esp."

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LND Famiglie Italiane ONLUS

The Association of Italian families involved. In the fight against the Lesch-Nyhan. SUPPORT THE INITIATIVES OF FAMILIES. Lesch-Nyhan Syndrome is a very rare disease that has severe implications on affected people and their families life. Books, thesis and articles. In this section you can download theses, books and articles on the Lesch-Nyhan syndrome. Reserved Area for the families. Please enter your username and password.

Welcome www.Lesch-Nyhan.org

Official website of the Lesch-Nyhan Disease International Study Group. The content is written for everyone, at all levels of experience. Each section starts with general information that is written for patients, family members and caretakers. More detailed information, intended for physicians and researchers, can be accessed via submenus and links from the introductory section. If necessary, feel free to contact the authors. HAJ and JEV 2006 2018.

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